After much prayer, we decided on a treatment plan that came from Germany. This seemed to be the most effective treatment outside of the standard treatment. Choosing treatment for Madi was a very difficult decision because the side effects are lifelong. Here is a link to the New England Journal of Medicine article.
http://content.nejm.org/cgi/reprint/352/10/978.pdf
The very first part of the article states, "The prognosis for young children with medulloblastoma is poor, and survivors are at high risk for cognitive deficits."
Madi's tumor had not metastasized therefore the benefits of this chemotherapy treatment looked promising especially in 3 year old children. On July 26th, the surgeon placed a reservoir in Madi's head that would be a direct insert for Methotrexate to be injected right into her brain and spinal fluid. On July 27th, Madi began her first treatment of this protocol.
Dear Madi, You are so dear to me. Four years ago, God gave you to me. You reflect his love in your eyes. I have grown to love you so much. Today I thought I might lose you. I thought Jesus was taking you home. I don't know what I would do without you. You have been a blessing to me and so many other people. I pray that you will bring glory to God no matter what happens. I pray each day that you will desire to know Jesus with all your heart and that your life will reflect the heart of the Almighty God. I love you, Madi. Love, Mommy
8.13.2008
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